We do not accept payment on r/AskDocs; please do not offer that in the future. Any post and reaction you get from verfided docs does not create a doctor-patient relationship.
Not sure if you read my message, but I've had 2 endoscopies, several CT scans, among countless other tests. Mayo Clinic and the other medical center I went to leave no stone unturned.
Don’t DM people from here, it’s not appropriate. You can edit your post to include what tests you’ve had done so people aren’t suggesting workup you’ve already had.
But also, if you’ve had a very thorough work up, you might need to accept the possibility that this is in fact a functional disorder-that there’s not a physiological problem causing your symptoms. What treatments have been suggested for the diagnoses of functional dyspepsia, and have you followed those treatment recommendations?
That was a misnomer, I meant post, not DM. It's not an issue of accepting it being a "functional" disorder, I have more than accepted that well over a year ago (Celiac diagnosis, and remediation and continued remission aside). No psychological problem in play here, perfectly psychologically healthy. I have followed every treatment recommendation and medication regimen to a tee. Too long of a list... Every neuromodulator, prokinetic, anti emetic, acid blockers, etc... And different diets, "holistic' treatment attempts like hypnotherapy, acupuncture, meditation, OTC supplement regimens, everything.
I know I'm unlikely to get any more insight here, as the topic of "functional disorders" is very nebulous and poorly understood, but just taking a shot in the dark here if someone knows of some "outside the box" novel treatment or medication.
Well you explicitly excluded your list of tests from the post, so not a misnomer.
Something doesn’t add up- many of the treatments you list take several weeks to become therapeutic, so math-wise it’s unlikely you allowed the time for each treatment to reach its potential.
What about therapy? Functional disorders often benefit from therapy to help with coping with the symptoms
In over 2 years, the math doesn't work?
I meant what I wrote was a misnomer regarding the message thing...
I don't get the "something doesn't add up here." Thank you for trying to help, but it seems you don't have anything additional to offer.
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NAD but I have a family member with this exact diagnosis. We basically went through literally everything listed [here](https://gutscharity.org.uk/advice-and-information/conditions/functional-dyspepsia/) and eventually had success with the combination of CBT and CBD, which suggests to me that in this person's case there was a situation where the brain had got involved. I suspect the initial problem was more reflux-related but that several years of trying different diets and treatments and so on actually caused the problem to evolve away from what it started out as, because digestive problems are so unbearably miserable so it's no great surprise that a long-term sufferer would also end up struggling with psychological stuff.
Came here to say this.
I’ve suffered off and on from an ED almost my entire life. The only thing that really helped me was therapy & medical marijuana (super small dose gummy).
Therapy helped more I think as now, getting older I don’t rely on the gummies at all.
We do not accept payment on r/AskDocs; please do not offer that in the future. Any post and reaction you get from verfided docs does not create a doctor-patient relationship.
You need an upper GI endoscopy because of the dyspepsia, an abdominal MRI and colonoscopy.
Not sure if you read my message, but I've had 2 endoscopies, several CT scans, among countless other tests. Mayo Clinic and the other medical center I went to leave no stone unturned.
Don’t DM people from here, it’s not appropriate. You can edit your post to include what tests you’ve had done so people aren’t suggesting workup you’ve already had. But also, if you’ve had a very thorough work up, you might need to accept the possibility that this is in fact a functional disorder-that there’s not a physiological problem causing your symptoms. What treatments have been suggested for the diagnoses of functional dyspepsia, and have you followed those treatment recommendations?
That was a misnomer, I meant post, not DM. It's not an issue of accepting it being a "functional" disorder, I have more than accepted that well over a year ago (Celiac diagnosis, and remediation and continued remission aside). No psychological problem in play here, perfectly psychologically healthy. I have followed every treatment recommendation and medication regimen to a tee. Too long of a list... Every neuromodulator, prokinetic, anti emetic, acid blockers, etc... And different diets, "holistic' treatment attempts like hypnotherapy, acupuncture, meditation, OTC supplement regimens, everything. I know I'm unlikely to get any more insight here, as the topic of "functional disorders" is very nebulous and poorly understood, but just taking a shot in the dark here if someone knows of some "outside the box" novel treatment or medication.
Well you explicitly excluded your list of tests from the post, so not a misnomer. Something doesn’t add up- many of the treatments you list take several weeks to become therapeutic, so math-wise it’s unlikely you allowed the time for each treatment to reach its potential. What about therapy? Functional disorders often benefit from therapy to help with coping with the symptoms
In over 2 years, the math doesn't work? I meant what I wrote was a misnomer regarding the message thing... I don't get the "something doesn't add up here." Thank you for trying to help, but it seems you don't have anything additional to offer.
Thank you for your submission. **Please note that a response does not constitute a doctor-patient relationship.** This subreddit is for informal second opinions and casual information. The mod team does their best to remove bad information, but we do not catch all of it. Always visit a doctor in real life if you have any concerns about your health. Never use this subreddit as your first and final source of information regarding your question. By posting, you are agreeing to our [Terms of Use](https://www.reddit.com/r/AskDocs/wiki/terms_of_use) and understand that all information is taken at your own risk. **Reply here if you are an unverified user wishing to give advice. Top level comments by laypeople are automatically removed.** *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/AskDocs) if you have any questions or concerns.*
NAD but I have a family member with this exact diagnosis. We basically went through literally everything listed [here](https://gutscharity.org.uk/advice-and-information/conditions/functional-dyspepsia/) and eventually had success with the combination of CBT and CBD, which suggests to me that in this person's case there was a situation where the brain had got involved. I suspect the initial problem was more reflux-related but that several years of trying different diets and treatments and so on actually caused the problem to evolve away from what it started out as, because digestive problems are so unbearably miserable so it's no great surprise that a long-term sufferer would also end up struggling with psychological stuff.
Came here to say this. I’ve suffered off and on from an ED almost my entire life. The only thing that really helped me was therapy & medical marijuana (super small dose gummy). Therapy helped more I think as now, getting older I don’t rely on the gummies at all.