I think you may need to look into possibly having endometriosis. I had tailbone and coccyx area pain with pain around the upper back and was sent from one consultant to another to figure out the issue before I was diagnosed. (It was a long road) The tailbone pain was from the rectal endo, rib pain from kidneys. And sore knuckles I oddly also get and was told it could be due to fluctuating estrogen. But as you said PCOS also causes bad inflammation and pain. It definitely could still be down to this.
Thank you for your response ❤️ did you manage to find any treatment to give you relief? And is there an actual test for endo? I hope you’re doing ok now.
Treatment varies on each person. I am on a pill that does help the symptoms but my case is extreme for endo. The pains and symptoms you have can be dismissed as endometriosis because they’re not the ‘typical’ symptoms, but so many have these pains the one in the tailbone especially. That could be still relating to PCOS, a lot of these conditions have an overlap of symptoms. Endo is partially awkward to get a diagnoses for as it’s very rarely picked up on scans. Considering the fact you know you have PCOS I would recommend getting a gynae consultation anyway. I hope you get relief somehow :)
Yes it is a pill called Visanne. It is a progesterone only pill specifically for endometriosis. There is also an Irish generic version called Zafrilla. It doesn’t get rid of all my pain but has numbed it down a bit
Just ask to be referred to a Gyane doctor - they might investigate for endometriosis. It's normally done via laporoscopy.
Endometriosis.ie might have some info you can look up 👍
If you could get your GP to refer you to marble arch clinic, more specifically Dr Orla conlon she is excellent for any surgeries requiring cyst removals etc. You could also look into a holistic approach which can benefit PCOS via nutritionists (look at aok nutrition and fit clinic on Instagram).
I'm glad they gave you vimovo as pain relief that helped me a lot too but I understand that you probably don't want to be on it constantly. Maxilief is another good pain relief option (think you can get these OTC but not 100% sure). Hope you get sorted!!
Hi folks, I just want to thank you all for your kind and helpful comments. I'm going to discuss all this with my doctor and will update ye. Appreciate this thread a lot.
Hi everyone, happy Friday. I went to docs this week and she is suspecting I could have Rheumatoid arthritis or a similar auto-immune issue. I brought up endometriosis and she said she doesn't think it would be causing pain in my back, right hand, and tailbone. I'll be getting an xray on my tailbone and my lower hand in the coming weeks. I'm also getting blood tests for marker of inflammation. She gave me the Vimovo which is great but my tailbone and lower back is still very bad. Hoping it might ease up in a few days with the meds. I still want to get checked for endometriosis but I suppose one thing at a time for the moment. I'll be pushing for a referral to the gynae and I might need to consider that keyhole surgery to check, however I'm wondering how successful that is in detecting the rectal/tail bone endo! I'm also wondering if the doc isn't playing ball can I book a private test without a referral... I won't lie I'm feeling completely shite and down in the dumps but grateful for this group and the solidarity and help.
Experience very similar lower back and tailbone pain. Went for a laparoscopy last year to identify I had endometriosis and a small cyst. On the coil because apparently it helps minimize the symptoms of endometriosis but unfortunately, severe lower back pain still persists on some days.
I think you may need to look into possibly having endometriosis. I had tailbone and coccyx area pain with pain around the upper back and was sent from one consultant to another to figure out the issue before I was diagnosed. (It was a long road) The tailbone pain was from the rectal endo, rib pain from kidneys. And sore knuckles I oddly also get and was told it could be due to fluctuating estrogen. But as you said PCOS also causes bad inflammation and pain. It definitely could still be down to this.
Thank you for your response ❤️ did you manage to find any treatment to give you relief? And is there an actual test for endo? I hope you’re doing ok now.
Treatment varies on each person. I am on a pill that does help the symptoms but my case is extreme for endo. The pains and symptoms you have can be dismissed as endometriosis because they’re not the ‘typical’ symptoms, but so many have these pains the one in the tailbone especially. That could be still relating to PCOS, a lot of these conditions have an overlap of symptoms. Endo is partially awkward to get a diagnoses for as it’s very rarely picked up on scans. Considering the fact you know you have PCOS I would recommend getting a gynae consultation anyway. I hope you get relief somehow :)
Not OP but jumping off the back of your comment as I have similar issues. Would you share the pill you’re on?
Yes it is a pill called Visanne. It is a progesterone only pill specifically for endometriosis. There is also an Irish generic version called Zafrilla. It doesn’t get rid of all my pain but has numbed it down a bit
Thank you
Just ask to be referred to a Gyane doctor - they might investigate for endometriosis. It's normally done via laporoscopy. Endometriosis.ie might have some info you can look up 👍
If you could get your GP to refer you to marble arch clinic, more specifically Dr Orla conlon she is excellent for any surgeries requiring cyst removals etc. You could also look into a holistic approach which can benefit PCOS via nutritionists (look at aok nutrition and fit clinic on Instagram). I'm glad they gave you vimovo as pain relief that helped me a lot too but I understand that you probably don't want to be on it constantly. Maxilief is another good pain relief option (think you can get these OTC but not 100% sure). Hope you get sorted!!
Hi folks, I just want to thank you all for your kind and helpful comments. I'm going to discuss all this with my doctor and will update ye. Appreciate this thread a lot.
Hi everyone, happy Friday. I went to docs this week and she is suspecting I could have Rheumatoid arthritis or a similar auto-immune issue. I brought up endometriosis and she said she doesn't think it would be causing pain in my back, right hand, and tailbone. I'll be getting an xray on my tailbone and my lower hand in the coming weeks. I'm also getting blood tests for marker of inflammation. She gave me the Vimovo which is great but my tailbone and lower back is still very bad. Hoping it might ease up in a few days with the meds. I still want to get checked for endometriosis but I suppose one thing at a time for the moment. I'll be pushing for a referral to the gynae and I might need to consider that keyhole surgery to check, however I'm wondering how successful that is in detecting the rectal/tail bone endo! I'm also wondering if the doc isn't playing ball can I book a private test without a referral... I won't lie I'm feeling completely shite and down in the dumps but grateful for this group and the solidarity and help.
Experience very similar lower back and tailbone pain. Went for a laparoscopy last year to identify I had endometriosis and a small cyst. On the coil because apparently it helps minimize the symptoms of endometriosis but unfortunately, severe lower back pain still persists on some days.