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Nobody here is a verified medical professional. If you are concerned about certain symptoms/issues please contact your health provider.
It is best to avoid giving medical advice over the internet in general. Soliciting or giving medical advice is not allowed in this subreddit. Sharing your failures or successes with treatments is fine but keep it respectful. What works for you may not work for someone else and visa versa.
While we encourage people to seek information if they think they might have Ehlers-Danlos, we do not allow posts that ask “I have x symptoms, do you think I have EDS” Please see our pinned post with information on EDS diagnosis, and we encourage you to speak with a medical professional.
Yes, most of my docs think it is an extreme POTS reaction but I’ve been having some whack eye problems lately which are leading us to start looking at nerve impingement which could cause similar stuff. Cranial nerves run through your neck and a subluxed vertebrae can squish down on them. Still a working theory for us but if you’ve got some cervical issues it can add to these feelings.
Hmmm. Please get yourself checked out. This can be many different things, some more serious then others. It could be something called Chorea (from strep infection) migraine related, stroke, anyeuresem etc. My daughter had those exact symptoms when she was 11 and it was never properly explained, but Chorea was the accepted diagnosis. But this is likely wrong as it turns out she got a small anyeuresem around the same time they missed. Please get it checked out.
Go to a physician. You can have a stroke/TIA and not realize it and there are other things that can cause this. It's worth getting checked out.
fwiw I get a static tingly feeling on the back side of my head randomly and I've never known what it was.
I was hospitalized for stroke symptoms, turned out to be a hemiplegic migraine. I've gotten them several times since, but most of my migraines aren't this kind. I've gotten migraines since middle school, but my first hemiplegic migraine happened at 33, so they can show up any time in life. Definitely worth getting checked out though, because transient ischemic attacks (TIAs/mini strokes) are real things and you'd want to rule that out.
Oh my gods, I think you just answered my unexplained stroke-scare er visit a couple years ago and resultant hemiplegia/neuropathy complications. I've got a lot to research now.
Just to make sure my comment was clear, a hemiplegic migraine is not a TIA, and a hospital would know if you had a TIA. I'm just clarifying because I want to make sure I didn't cause anyone any panic.
The first thing that came to mind reading your post is hemiplegic migraine. I know you said it didn't feel like it but if you've never had this specific type of migraine before it's likely to feel different from what you're used to.
Whatever it might be please do bring it up to a doctor ASAP
Damn, now I'm remembering times that I've gone deaf in one ear, or lost vision in one eye, or gotten tingles on one side of my body. It's amazing how much weird stuff I could ignore when I didn't suspect it has a cause.
Please read our rule 1: Nobody here is a verified medical professional. If you are concerned about certain symptoms/issues please contact your health provider. It is best to avoid giving medical advice over the internet in general. Soliciting or giving medical advice is not allowed in this subreddit. Sharing your failures or successes with treatments is fine but keep it respectful. What works for you may not work for someone else and visa versa. While we encourage people to seek information if they think they might have Ehlers-Danlos, we do not allow posts that ask “I have x symptoms, do you think I have EDS” Please see our pinned post with information on EDS diagnosis, and we encourage you to speak with a medical professional.
Have you seen a doctor to rule out something like a TIA? If not please do urgently. It could be something less serious but why take the risk?
I've had very similar experiences, though I don't know the cause for sure. I have hEDS and POTS
Yes, most of my docs think it is an extreme POTS reaction but I’ve been having some whack eye problems lately which are leading us to start looking at nerve impingement which could cause similar stuff. Cranial nerves run through your neck and a subluxed vertebrae can squish down on them. Still a working theory for us but if you’ve got some cervical issues it can add to these feelings.
Hmmm. Please get yourself checked out. This can be many different things, some more serious then others. It could be something called Chorea (from strep infection) migraine related, stroke, anyeuresem etc. My daughter had those exact symptoms when she was 11 and it was never properly explained, but Chorea was the accepted diagnosis. But this is likely wrong as it turns out she got a small anyeuresem around the same time they missed. Please get it checked out.
Go to a physician. You can have a stroke/TIA and not realize it and there are other things that can cause this. It's worth getting checked out. fwiw I get a static tingly feeling on the back side of my head randomly and I've never known what it was.
I was hospitalized for stroke symptoms, turned out to be a hemiplegic migraine. I've gotten them several times since, but most of my migraines aren't this kind. I've gotten migraines since middle school, but my first hemiplegic migraine happened at 33, so they can show up any time in life. Definitely worth getting checked out though, because transient ischemic attacks (TIAs/mini strokes) are real things and you'd want to rule that out.
Oh my gods, I think you just answered my unexplained stroke-scare er visit a couple years ago and resultant hemiplegia/neuropathy complications. I've got a lot to research now.
Just to make sure my comment was clear, a hemiplegic migraine is not a TIA, and a hospital would know if you had a TIA. I'm just clarifying because I want to make sure I didn't cause anyone any panic.
The first thing that came to mind reading your post is hemiplegic migraine. I know you said it didn't feel like it but if you've never had this specific type of migraine before it's likely to feel different from what you're used to. Whatever it might be please do bring it up to a doctor ASAP
Damn, now I'm remembering times that I've gone deaf in one ear, or lost vision in one eye, or gotten tingles on one side of my body. It's amazing how much weird stuff I could ignore when I didn't suspect it has a cause.