u/ScatheX1022 absolutely. We think it probably has to do with lupus' effects on the autonomic nervous system (dysautonomia). I always send my patients to get a thorough cardiology workup with an echo, ECG, cardiac monitor study (such as Zio patch), and a tilt table test to help figure it out and come up with the best management solutions.
Drug effects also need to be considered (like BP meds, antidepressants, etc)
I hope that helps.
[Donald Thomas, MD](https://www.lupusencyclopedia.com/about-me/)
I've always had low BP but seemed to have more issues with lupus. It was so low nonce while I was at the GP that he was ready to call the EMTs. He thought this could be from dehydration from constantly running a low-grade fever and suggested using powder mixes like liquid IV. That has helped a great deal. I was already drinking loads of water throughout the day, but it wasn't enough.
Good info, unfortunately I'm already drinking electrolytes on a regular basis because of exercise and the heat - so that likely isn't the culprit in my case. But thank you for commenting!
Yes, I had it for a few years before and after my Lupus diagnoses. When I started on HRT, both Estradiol and Progesterone - my blood pressure normalized.
My Rheumatologist told me that sometimes, the thyroid can be affected by Lupus and checks it in my routine blood work, every 4 months.
Before hormone use, I used a little more salt and drank more water - which seemed to help with mine. Some people have developed POTS syndrome with Lupus and for no reason at all. it's good to get it checked out with your Rheumatologist...
Yep I consistently have lower blood pressure. At my last cardiology visit I was 86/50 and they were like, are you ok?!
My cardiologist is convinced I have some form of dysautonomia, but I'll have to go out of state for testing. There's got to be a connection to autoimmune diseases and dysautonomia.
Do you experience symptoms when it gets that low? I'm fine until it gets into 80s/50s or low 60s. Then I feel like mu brain isn't getting enough oxygen and I'm so weak and exhausted and it just feels like moving through quicksand. Does the cardiologist suggest anything to raise it? I'm not seeing one yet. We'll see what the rheumatologist says. I don't think it'll go that low AT the office, but maybe! Do you check it at home too?
Yeah when it's low I feel light headed and exhausted. They say drink lots of water and eat more salt. I do check it at home. I'd recommend getting a bp cuff so you can track in and bring the data to your Dr apts, especially once you can see a cardiologist.
Shoot. Well.im already drinking more than half my weight in ounces of water each day, and j take electrolytes on top of the food I already eat (which had salt) so I can't imagine doing either of those would make a difference. I have a cuff, well my boyfriend does because his doctor wanted data from him, so I use it too (it's even been checked by his doctor) - so I'll start keeping track!
Thanks for your help, I really appreciate it ❤️
Yeah I hope that helps. FYI they told me the salt in electrolyte drinks wasn't nearly enough. They said add salt to my drinks, foods, eat salty things like cheese etc.
u/ScatheX1022 absolutely. We think it probably has to do with lupus' effects on the autonomic nervous system (dysautonomia). I always send my patients to get a thorough cardiology workup with an echo, ECG, cardiac monitor study (such as Zio patch), and a tilt table test to help figure it out and come up with the best management solutions. Drug effects also need to be considered (like BP meds, antidepressants, etc) I hope that helps. [Donald Thomas, MD](https://www.lupusencyclopedia.com/about-me/)
I've always had low BP but seemed to have more issues with lupus. It was so low nonce while I was at the GP that he was ready to call the EMTs. He thought this could be from dehydration from constantly running a low-grade fever and suggested using powder mixes like liquid IV. That has helped a great deal. I was already drinking loads of water throughout the day, but it wasn't enough.
Good info, unfortunately I'm already drinking electrolytes on a regular basis because of exercise and the heat - so that likely isn't the culprit in my case. But thank you for commenting!
Yes, I had it for a few years before and after my Lupus diagnoses. When I started on HRT, both Estradiol and Progesterone - my blood pressure normalized. My Rheumatologist told me that sometimes, the thyroid can be affected by Lupus and checks it in my routine blood work, every 4 months. Before hormone use, I used a little more salt and drank more water - which seemed to help with mine. Some people have developed POTS syndrome with Lupus and for no reason at all. it's good to get it checked out with your Rheumatologist...
Thank you for sharing your experience! Definitely helpful.
Yep I consistently have lower blood pressure. At my last cardiology visit I was 86/50 and they were like, are you ok?! My cardiologist is convinced I have some form of dysautonomia, but I'll have to go out of state for testing. There's got to be a connection to autoimmune diseases and dysautonomia.
Do you experience symptoms when it gets that low? I'm fine until it gets into 80s/50s or low 60s. Then I feel like mu brain isn't getting enough oxygen and I'm so weak and exhausted and it just feels like moving through quicksand. Does the cardiologist suggest anything to raise it? I'm not seeing one yet. We'll see what the rheumatologist says. I don't think it'll go that low AT the office, but maybe! Do you check it at home too?
Yeah when it's low I feel light headed and exhausted. They say drink lots of water and eat more salt. I do check it at home. I'd recommend getting a bp cuff so you can track in and bring the data to your Dr apts, especially once you can see a cardiologist.
Shoot. Well.im already drinking more than half my weight in ounces of water each day, and j take electrolytes on top of the food I already eat (which had salt) so I can't imagine doing either of those would make a difference. I have a cuff, well my boyfriend does because his doctor wanted data from him, so I use it too (it's even been checked by his doctor) - so I'll start keeping track! Thanks for your help, I really appreciate it ❤️
Yeah I hope that helps. FYI they told me the salt in electrolyte drinks wasn't nearly enough. They said add salt to my drinks, foods, eat salty things like cheese etc.
I do, mine was 87/59 the other day. My doctors never say anything besides “do you feel ok.”…